Site Map

Home

For new families

Hydranencephaly
Information 


Our Rays of Sunshine

Resources in caring for a Child with Hydranencephaly

Physical Care of a Child with Hydranencephaly

Health Conditions

Prenatal Diagnosis

For Grieving Families

Difficult Times Pt. 1: Taking Care of You

Difficult Times: Pt 2: What If?

About us

News

Contact a Family

Book: Caring for Your Child With Hydranencephaly

Hydranencephaly data base

Contact Barb

Printed Materials

Fact Sheet

Fact Sheet Brochure

Frequently Asked Questions

FAQ Brochure # 1

FAQ Brochure # 2

FAQ Brochure # 3

FAQ Brochure # 4

FAQ Brochure # 5

FAQ Brochure # 6

FAQ Brochure # 7

Myths about Hydranencephaly

Myths Brochure

Dear Doctor Letter

Structural Cognitive Modifiability

 

This is a program endorsed by the Grandfather of one of our children (Jason S.) and is presented here for your information only.


Dr. Reuven Feuerstein, an Israeli Psychologist, has developed the theory of “Structural Cognitive Modifiability”.  According to this theory, the brain is a highly flexible organ and can, with suitable assistance, modify itself in amazing ways.  He has demonstrated how this theory can be used to develop the essential “cognitive structures” required for higher level thinking, working with children who have had brain injuries, birth defects or abuse.  His work is described at the web site:  http://www.icelp.org

At this time we do not have experience with children who exhibit as much brain loss as some of the hydran children.  Myron and Kammy intend to try with Jason as soon as his situation becomes more stable.

Here are a few examples of how this theory works as suggested for Jason and his mother Kammy.

Just a few thoughts following on Kammy's note about using a stethoscope to get Jason's attention.

We want to help a child to create connections in their brains. When we stimulate a child by providing him or her with a sound, that child will demonstrate that the sound has been heard by a reaction. If the reaction involves the eyes looking around then the child is trying to associate the auditory stimulation with something.

You can help the child to make the association. If you are using a stethoscope then you should position yourself direction in front of the child and as you emit a sound, say humming a tune, you should also make some kind of shape with your mouth. Then do this at varying distances from the child. If you see the child trying to mimic your mouth position, you will have evidence that the child is making a connection. If you see an attempt to mimic what you do with your mouth, then repeat that many times-100 is not too many times!

Making neural connections denotes learning.

I suspect (but cannot prove) that the differences in the amount of brain affect the speed of learning but (within limits) not how much can be learned. I repeat, this is not a scientifically verified theory-just a private hypothesis..


Myron Tribus, grandfather to Jason, age 1 ˝  If you have questions about this program you can contact Myron at:  mtribus@earthlink.net

Other pages in this section:
Sensory Stimulation Links and Resources
Sensory Stimulation Experiences
Sensory Stimulation Activities
Choosing a Toy
Active Learning
 

 

Subscribe to the Hydranencephaly Mailing list

August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca