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Difficult Times: Pt 2: What If?

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Health Conditions that often Accompany Hydranencephaly


As if being born with only a brain stem isn't enough, our kids end up with a number of other problems. In this section of the website I provide information and links to information on some of the conditions your child MIGHT face. Remember not all children with Hydranencephaly will have all or even any of these conditions. In most of the sections I have also provided personal experiences of families of children with Hydranencephaly as they are told in the book "Caring For Your Child With Hydranencephaly"

Remember, I am only a mom. Please always check with your child's Dr or an appropriate professional before trying any of the suggestions in this section of the website.

Health Conditions Table of Contents







Illnesses Miscellaneous


Respiratory Problems

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

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