For more information on
1. Our Frequently asked
questions database You can also add your own questions.
Note: August 2012: as this paper
needs to be updated, it will not be online until that has been done
(soon I hope).
2. Informational Brochures on Hydranencephaly
Over the years we have compiled a number of other informational
brochures that can be printed and shared. See links above.
3. The book "Caring For Your
Child" with Hydranencephaly.
This is the 2nd edition of the book and is available in pdf format on cd.
Each family of a child with Hydranencephaly is entitled to 1 copy for
themselves and 1 to give to a professional free of charge. Further
copies can be purchased for a suggested donation of $20.
For more information on the book
To order the book, please contact
Please fill out our database in order to help us to get a better idea of
the incidence of Hydranencephaly.
Hydranencephaly Mailing list: This group is for all families,
friends and professionals who care for a child with Hydranencephaly. It
is a place to share joys, concerns and get information.
Mailing List: This list is for families who have had a child with
We are now on Facebook as well:
Sunshine Information and Support group
Rays of Sunshine Information Page
Sunshine Angels Group ( a safe place for those who have lost their
child with Hydranencephaly to grieve and support one another
Hydranencephaly for even more specific information on Hydranencephaly