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Massachusetts Resources

Information in this section was obtained from the following sites
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Massachusetts_2003.pdf
https://performance.hrsa.gov/mchb/mchreports/link/statelink_result.asp
http://www.fns.usda.gov/wic/Contacts/statealpha.HTM
http://www.yellowpagesforkids.com/help/ma.htm
http://www.cms.hhs.gov/medicaid/state.asp?state=MA
http://www.nichcy.org/stateshe/ma.htm
http://www.library.tmc.edu/childrenshospitals.html
http://www.respitelocator.org/m2states.htm
http://eparent.com/resources/directories/directories_van.cfm

Title V, Children With Special Health Care Needs Program:
I have 3 different names and email addresses. The first is from the Maternal and Child Health Bureau:

CSHCN Contact
Sally Fogerty
Assistant Commissioner
Mass.Dept. of Public Health, 250 Washington St.
Boston, MA,02108-4619
(617) 624-6090
(617) 624-6062 fax
Email: sally.fogerty@state.ma.us

This one is from the 2003 Exceptional Parent Resource Guide

Bureau of Family and Community Health
Massachusetts Department of Public Health
Deborah Klein Walker, EdD
Associate Commissioner
250 Washington St. 2nd Fl
Boston, MA 02108-4619            
(617) 624-5222
(617) 624-5261
Email: Debbie.walker@state.ma.us

And, one more: This one provides more information on the program and eligibility criteria
http://cshcnleaders.ichp.edu/TitleVDirectory/PDF-Files-May-2003/Massachusetts_2003.pdf

Medicaid
Massachusetts Medicaid Office
Office of Health and Human Services of Massachusetts
600 Washington Street
Boston, MA 02111
Local: 1-617-628-4141
Toll-Free: 1-800-325-5231
Toll-Free TTY: 1-888-665-9997
Fax: 1-617-210-5820

Website: http://www.mass.gov/portal/index.jsp?pageID=eohhs2subtopic&L=4&L0=Home&L1=Government&L2=Departments+and+Divisions&L3=MassHealth&sid=Eeohhs2

For more information:
http://www.cms.hhs.gov/medicaid/state.asp?state=MA

WIC
Mary Kelligrew Kassler 
Director, Massachusetts WIC Program 
Massachusetts Department of Public Health 
250 Washington Street, 6th Floor 
Boston
, MA  02108-4619 
telephone:  (617) 624-6100 
toll-free in-state: 1-800-WIC-1007 or 1-800-942-1007
fax:  (617) 624-6179 
email:  mary.kassler@state.ma.us
website: http://www.state.ma.us/dph/fch/wic.htm

State CHIP Program
(health care for low-income uninsured children)
MassHealth Enrollment Center
Central Processing Unit
P.O. Box 129124
Boston, MA 02112-9124
(888) 665-9993; (888) 665-9997 (TTY)
Web: www.mass.gov/dma

Education
State Department of Education: Special Education
Marcia Mittnacht, Director
Special Education Planning and Policy Development Office
Department of Education
350 Main Street
Malden, MA 02148-5023
(781) 338-3000; (781) 338-3388
E-mail: mmmittnacht@doe.mass.edu
Web: www.doe.mass.edu/sped

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Ron Benham, Director
Early Childhood Unit
Division for Special Health Needs
Department of Public Health
250 Washington Street, 4th Floor
Boston, MA 02108
(617) 624-5969
(800) 905-8437 (Early Intervention Programs)
E-mail: ron.benham@state.ma.us
Web: www.mass.gov/dph/

Programs for Children with Disabilities: Ages 3 through 5
Elisabeth Schaefer, Administrator
Early Learning Services
Department of Education
350 Main Street
Malden, MA 02148-5023
(781) 338-6357
E-mail: eschaefer@doe.mass.edu
Web: www.doe.mass.edu

Special Education Web Page
For questions about special education compliance monitoring systems and requirements in school
districts, education collaboratives, charter schools or Chapter 766 Approved Private Schools, contact
Program Quality Assurance Services at (781)338-3700.
Web: http://www.doe.mass.edu/sped/

Hospitals/Rehabilitation Facilities
Baystate Medical Center Children’s Hospital
759 Chestnut Street
Springfield, MA 01199
Phone: 413-794-0000
http://www.baystatehealth.com/eConsumer/bhs_chan_index.jsp?chId=da1482265d33df00VgnVCM10000
00f0c19acRCRD

Boston Shriner’s Hospital
51 Blossom St.
Boston, MA 02114
Telephone 617-722-3000
Fax 617-523-1684
http://www.shrinershq.org/shc/boston/

Children's Hospital Boston
300 Longwood Avenue
Boston, MA 02115
617-355-6000
http://www.childrenshospital.org/

Tufts-NEMC Floating Hospital For Children
755 Washington Street
Boston, MA 02111
http://www.nemc.org/home/aboutus/childrens.htm

Franciscan Children’s Hospital and Rehabilitation Center
30 Warren Street, Brighton, MA 02135
617-254-3800 ext. 2600
http://www.fch.com/about/contact.html

Mass General Hospital For Children
Primary Care and Specialty Information 877-KIDS-MGH
55 Fruit Street
Boston, MA 02114
617-726-2000 (main switchboard)
http://www.massgeneral.org/depts/mghfc/mghfc_contactus.htm

Springfield Shriners Hospital
516 Carew St.
Springfield, MA 01104
Telephone 413-787-2000
Fax 413-787-2009
http://www.shrinershq.org/shc/springfield/ 

Specific Disability Resources
Blind/Visually Impaired
Sandra Daly, Director
Children's Services
Massachusetts Commission for the Blind
48 Boylston Street
Boston, MA 02116
(617) 626-7480; (800) 392-6450
(617) 626-7650 (TTY)
Web:
www.mass.gov/mcb

Massachusetts Commission for the Blind
88 Kingston Street
Boston, MA 02111
(617) 727-5550; (800) 392-6450; (800) 392-6556 (TTY)
Web: www.state.ma.us/mcb

Regina Genwright, Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (212) 502-7662 (TTY)
E-mail: afbinfo@afb.net
Web: www.afb.org

Judy Westgate, President/Treasurer
Massachusetts Association of Parents of Visually Impaired Children (MAPVI)
22 Old Marlboro Road
Maynard, MA 01754
(978) 897-3005
E-mail: judywestgate@comcast.net

Cerebral Palsy/Physical Disabilities
Todd Kates, Executive Director
United Cerebral Palsy of MetroBoston, Inc.
71 Arsenal Street
Watertown, MA 02472
(617) 926-5480
E-mail: ucpboston@ucpboston.org
Web: www.ucpboston.org

Kirk Joslin, President
Easter Seals Massachusetts
(call for info about assistive technology, recreation, and therapy)
484 Main Street
Worcester, MA 01608
(508) 757-2756; (800) 244-2756
E-mail: kirkj@eastersealsma.org
Web: www.eastersealsma.org

Epilepsy
Amy Cole, Information & Referral Coordinator
Epilepsy Foundation of Massachusetts and Rhode Island
Programs and Services Office
540 Gallivan Boulevard, 2nd Floor
Boston, MA 02124
(617) 506-6041; (888) 576-9996
E-mail: acole@efmri.org
Web: www.epilepsymassri.org

Mental Retardation/Developmental Disabilities
State Mental Retardation Program
Gerald J. Morrissey Jr., Commissioner
Department of Mental Retardation
500 Harrison Avenue
Boston, MA 02118
(617) 727-5608
Web: www.mass.gov/dmr

Councils on Developmental Disabilities
Daniel Shannon, Executive Director
Massachusetts Developmental Disabilities Council
174 Portland Street, 5th Floor
Boston, MA 02114
(617) 727-6374 ext. 100; (617) 727-1885 (TTY)
E-mail: Dan.Shannon@state.ma.us
Web: www.mass.gov/mddc

University Centers for Excellence in Developmental Disabilities
William E. Kiernan, Director
Institute for Community Inclusion
UMASS Boston
100 Morrissey Boulevard
Boston, MA 02125
(617) 287-4300; (617) 287-4350 (TTY)
E-mail: ici@umb.edu
Web: www.communityinclusion.org

William McIlvane, Director
Charles Hamad, Associate Center Director
UMASS Medical School - E.K. Shriver Center
200 Trapelo Road
Waltham, MA 02452-6319
(781) 642-0001; (800) 764-0200 (TTY)
Web: www.umassmed.edu/shriver

Leo Sarkissian, Executive Director
The Arc Massachusetts
217 South Street
Waltham, MA 02453
(781) 891-6270
E-mail:
arcmass@arcmass.org
Web:
www.arcmass.org

Terri Angelone, Executive Director
Greater Boston Arc
221 N. Beacon Street, 2nd Floor
Boston, MA 02135
(617) 783-3900
E-mail:
gbarc@gbarc.org
Web:
www.gbarc.org

Michael Andrade, Executive Director
The Arc of Northern Bristol County
5 Bank Street
Attleboro, MA 02703
(508) 226-1445; (888) 343-3301
E-mail:
mandrade@arcnbc.org
Web:
www.arcnbc.org

Speech and Hearing
Mary Ellen Curran, Director
Massachusetts Speech-Language-Hearing Association
77 Rumford Avenue, Suite 3B
Waltham, MA 02453
(781) 647-7031; (800) 898-8177
E-mail:
msha@camihq.com
Web:
www.msha-lic.org

General Disability Resources
Protection and Advocacy Agency
Christine Griffin, Executive Director
Disability Law Center, Inc.
11 Beacon Street, Suite 925
Boston, MA 02108
(617) 723-8455; (800) 872-9992 (V)
(617) 227-9464 (TTY); (800) 381-0577 (TTY)
E-mail: mail@dlc-ma.org
Web: www.dlc-ma.org/

Client Assistance Program
Barbara Lybarger, Assistant Director
Client Assistance Program
Massachusetts Office on Disability
One Ashburton Place, Room 1305
Boston, MA 02108
(617) 727-7440; (800) 322-2020 (In MA)
E-mail barbara.lybarger@modi.state.ma.us
Web: www.mass.gov/mod

Home Modifications Loan Program for People with Disabilities
Massachusetts Rehabilitation Commission
27 Wormwood Street
Boston, MA 02210-1616
(617) 204-3600; (800) 245-6543
Web: www.mass.gov/mrc/agency/homemods.htm

Massachusetts Special Needs
29 High Street
North Brookfield, MA 01535
(508) 867-3214
E-mail: admin@masssne.net
Web: http://www.masssne.net
Free classified ad service for special needs equipment, calendar of events and more.

Parent Organizations
Parent Training and Information Center (PTI)
Richard Robison, Executive Director
Federation for Children with Special Needs
1135 Tremont Street, Suite 420
Boston, MA 02120-2140
(617) 236-7210 (V/TTY); (800) 331-0688 (in MA only)
E-mail: fcsninfo@fcsn.org
Web: www.fcsn.org/

Parent-To-Parent
Mary Castro Aten, Director
Family TIES of Massachusetts
Massachusetts Department of Public Health
Donovan Health Building, 3rd Floor
5 Randolph Street
Canton, MA 02021
(781) 774-6736; (800) 905-TIES
E-mail: mcaten@fcsn.org
Web: www.massfamilyties.org

Massachusetts Families Organizing for Change
P.O. Box 61
Raynham, MA 02768
(800) 406-3632
E-mail: mfofc@tmlp.com
Web: www.mfofc.org

Community Parent Resource Center
(Serving the city of Boston)
Charlotte R. Spinkston, Project Director
Urban PRIDE
c/o The Boston Foundation
75 Arlington Street, 10th Floor
Boston, MA 02116
(617) 338-4508
E-mail: c.spinkston.urbanpride@att.net

(Serving Martha's Vineyard and Nantucket)
Carol Kennedy, Executive Director
Island Parents Educational Support & Training Center (IPEST)
P.O. Box 4081
Vineyard Haven, MA 02568
(508) 693-8612
E-mail: carolkennedy@ipest.org
E-mail: ipest@hotmail.com
Web: www.ipest.org

Respite
The ARC of Northern Bristol County Attleboro (508) 226-1445

Boston Children's Services Boston (617) 927-0657 www.thehome.org 

Home for Little Wanderers Boston (617) 267-3700

The Commonwealth of Massachusetts Boston (617) 727-7600

Home & Health Resources Braintree (781) 849-1717

Cambridge Family and Children's Services Cambridge (617) 876-4210

Harvard Children's Initiative Cambridge (617) 496-6881

Judge Rotenberg Educational Center Canton (781) 828-2202 www.judgerc.org 

Massachusetts Hospital School Canton (781) 830-8419

Camp Paul for Exceptional Children Chelmsford (508) 256-4396

North Shore ARC Danvers (508) 762-4878 

START Danvers (508) 750-6828

Arc of Great Fall River Fall River (508) 679-0002

Metrowest Home Care and Hospice Framingham (508) 383-7000

The Arc of Franklin County Greenfield (413) 774-5558

Department of Mental Retardation Hathorne (508) 774-5000, ext 531

Massachusetts Department of Mental Retardation Haverhill (508) 521-9432

Agape Inn Home and Respite Care Holbrook (781) 767-4358

ARC of Greater Plymouth Kingston (781) 585-1310 www.thearcofgp.com 

Fidelity House, Inc. Lawrence (978) 685-9471

Greater Lowell ARC Lowell (508) 459-6179

Special Care Home Health Services Lowell (508) 458-4357

The Respite Inn Lowell (508) 454-4781

Lynn Special Needs Camp Lynn (617) 477-7096

Project COPE, Inc Lynn (781) 593-5333 www.projectcope.com 

Greater Marlboro Programs Marlborough (617) 393-6116

Respite By The Sea Marshfield (617) 837-2310

Natick Recreation & Human Services Natick (508) 651-7267

Natick Visiting Nurse Association Natick (508) 653-3081

Delta Projects, Inc. Needham (781) 444-2907

Gentiva North Andover (978) 681-5403

Southern Shore Arc North Weymouth (617) 335-3023

Berkshire County ARC Pittsfield (413) 499-4241

East Middlesex ARC Reading (781) 942-4888

Boston Pediatric AIDS Project Roxbury (617) 442-6758

Kennedy-Donovan Center, Inc. South Dennis (508) 385-6019

El Instituto de la Familia Crisis Nursery Springfield (413) 746-4885

Abilities Unlimited/Respite Westfield (413) 562-5678

South Norfolk County ARC Westwood (617) 762-4001

Seven Hills Family Services Worcester (508) 755-2340

 Van Conversions
Automotive Innovations, Inc.
4 First St.
Bridgewater, MA 02324

New England Wheels, Inc.
3 Dunham Road
Billerica, MA 01821
Phone: 800-886-9247

Ride-Away Corp.
North Attleboro, MA
Phone: (888) Ride-Away
Web site: www.ride-away.com
The East's leading handicap van dealer. Five locations from New England to Washington, DC. Many new & used vans available. NMEDA 5-Star dealer (also servicing Rhode Island)

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

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