Angel Kristen's Story

July 4, 1982-September 10, 2003

Kristen’s birth mother, unaware of her pregnancy, received no prenatal care. Kristen weighed 3lbs 2oz and was soon diagnosed with hydranencephaly. Her young, unmarried, birth parents waived their parental rights. At 3 months of age, she came into my life as a foster child. Her head enlarged, fontanel bulging, she was one miserable little baby. Finding a compassionate doctor made a significant difference to her life. Adopting Kristen made a significant difference to mine.

Kristen will turn 18 years old this year. She is still petite, (barely 50lbs) and still very much a baby. Kristen wears diapers, is unable to roll over, sit unassisted, walk, talk, or feed herself. She has cerebral palsy, a soft smile, visual impairment, thick, curly hair, a seizure disorder, and beautiful eyes. She has scoliosis, is peacefully content, with a very forgiving heart. Kristen has chronic congestion, a remarkably jolly chuckle, asthma, freckles all over her nose, and hypothermia. She has a g-tube and has taken nothing by mouth since she was 7 years old. She has a shunt to drain the fluid in her head, and a most mischievous giggle.

Kristen has been able to attend a center school since she was 3 years old. She has had the opportunity to be a loved family member, and to enjoy the resources of the community. My responsibility has been to give her opportunities. I believe she enjoys activities at a different level than others, but I am not capable to judge the quality of her experiences. The sight of Kristen can evoke a myriad of emotions. Whatever the reaction, it is seldom neutral. Quietly, gently and unassumingly, Kristen gives everyone she meets, an opportunity to be the most loving person possible.

Through Kristen, I have learned love has no need of achievement and wealth. Love has no need for a strong, healthy, body. Love does not have to be boisterous and flamboyant. It can come quietly, expressed soundlessly, and serenely, in a small girl’s eyes. Kristen has taught me that love asks for no more than I can give. The calmness of her soul has enabled me to give her the most loving care I am able to give. That is all Kristen has ever asked of me.