Hydranencephaly Survey Links

As of July 14, 2007 the Hydranencephaly survey is now complete. No further data will be collected. Thank you to everyone who took the time to complete this very long survey. Once the data is analyzed we will have a much clearer picture of what children with Hydranencephaly are like.

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August 16, 2001- January 12, 2005

This website is funded in loving memory of Jason S. by his mother Kammy

The information on this site is provided by families, caregivers, and professionals who are or have been caring for a child with Hydranencephaly.

Please report any broken links or missing photos to angelbearmom@shaw.ca